melbourne mamma
Migraines and Botox – My life as a pin cushion
I thought it was time for another migraine update as lots of people have been asking how I’ve been doing.
One of the reasons I haven’t done an update for awhile is because it seem like whenever I’m doing well and I talk or write about it, I end up jinxing myself and I get a migraine. No kidding, it really happens.
I was just telling someone earlier this week how I’d gone for almost 12 days without one and was feeling really good and then later that day I went down in a heap and had a shocking migraine for the next three days.
Other times I don’t feel like writing or talking about it because I’m going through a rough patch and I’m too frustrated or upset to talk about it.
Anyway, for those of you who are new to my blog, I have been having Botox injected in my head for the past year, to try and control my migraines, which I suffer from between 3-5 days per week.
The migraines are a result of what happened to me on this day.
Every 12 weeks I visit my neurologist and he injects Botox (approx 40 times) in to my head, neck and shoulders. It hurts like hell and the feeling of tightness in my head for three months is very uncomfortable but at this stage it’s the only way I can manage (ie survive) day-to-day life.
The Botox has definitely made an improvement to the frequency and severity of my migraines but unfortunately not as much as I would have liked. It has helped a little bit with the pain in my shoulder too.
I’ve gone from having 3-5 days of migraines a week to only 1 or 2 days and I’ve even gone up to 12 days without one.
I now know that this is probably as good as it’s going to get, so I just have to make the most of it. Yes, I have days were it just gets too much and I’m angry and frustrated but I just have to remind myself that it could have been a LOT worse.
The past 10 years of my life has been dominated by these migraines and unfortunately it looks like they’re here to stay!
Melbourne Mamma’s Market goes global (well kind of)
Just under a year ago I received an email from the super talented Bec at Motif Creative Design asking for my permission to enter my Melbourne Mamma’s Market logo, that she designed, into an International design competition.
Of course I said “yes”. I think my logo is fabulous, so I knew that others would think so too.
I was super excited when Bec contacted me again to tell me that my logo and another of her designs Luceo had been chosen to appear in LogoLounge7.
The book pays tribute to the brilliant work from top designers around the world. The LogoLounge website showcases the work of the world’s top designers as well as up-and-coming new talent, and this book presents the site’s best designs of the past year as judged by an elite group of name-brand designers.
Now the world will see my little babushkas and I hope they love them as much as I do 🙂
The Unluckiest AND Luckiest Day of My Life
Please note: all accounts of this day are not mine but are from those who were there on the day – my partner “A” (who is now my husband), doctors, police & emergency workers. I have no memory of this day or the days following.
Here is my story…..
My week had gotten off to a great start – I had just spent a fabulous long weekend in Lorne relaxing with A and I was on my way to work at my new job in the city, that I had started the previous month.
As I sat stationary in my car at a red light on a freeway off ramp, I was rear ended by a drunk (*asshole*) driver travelling at approx 80-100km/h, who was heading home (at 8.00am) from a big night in the city.
My car was pushed into the car in front of me and was then launched (apparently airborne and flipped 180 degrees) into oncoming traffic. Another car travelling in the opposite direction then t-boned my car on the passenger side. Police later told us that witnesses said my car looked like it was bouncing around in a pinball machine.
When paramedics arrived, I was unconscious. I remained unconscious as they cut me from the car and transported me to hospital. Years later I spoke with a fireman who attended the scene (he ended up being related to someone I knew), and he still remembered my accident and said that they assumed when they arrived at the accident that they were going to be removing a body – my body – from the wreckage, as it was pretty bad. He told me how surprised they were to discover I was actually still alive. (I felt sick to my stomach when he told me this. I had no idea)
I was then rushed to the hospital, where they discovered I had a broken pelvis, internal bleeding, fractured vertebrae, and head, shoulder and foot injuries. I was pretty beaten up.
Somehow I managed to tell them the name of A’s work (apparently I couldn’t remember his phone number or last name) and they eventually tracked him down to tell him what had happened. I can only imagine how it would feel to receive news like this – especially when he’d only kissed me goodbye a few hours earlier. He then had to call my parents (who lived interstate) and tell them what had happened – he said it was the hardest thing he’s ever had to do.
Apparently when he arrived at the hospital, I was angry and upset because they had cut my clothes off me and I had been wearing my brand new skirt (obviously the bump to my head hadn’t affected my love of fashion) and was not happy about it.
My parents arrived soon after and stayed at my bedside for the remainder of the week.
During that time A and my dad went to the wreckers to collect my belongings from the car. When they arrived, the guys there were avoiding them and acting a little weird until A mentioned that he had just come from the hospital to collect my stuff and they were shocked, as they had assumed that whoever had been in my car had been killed (A assumed this was why they’d been acting a little odd when he got there). My dad took one look at the car and walked out – A later told me, that my dad threw up when he saw what was left of my car.
The following month in hospital was a blur of pain, rehab and more pain. Lots of people came by to visit, some I remember, others I don’t. I hated being in the hospital and couldn’t wait to get home.
I haven’t included any pictures of what was left of my car here because some family members and friends have asked never to see them but here’s one of me in the hospital a few days after the accident.
One of the hardest things for me following the accident was relearning how to walk.
It’s strange as an adult having to learn such a basic task – something that we do every single day without thought. One of my therapists told me that learning to walk as an adult is the most difficult thing a person can do. Even though it had only been a couple of weeks since I had walked, my body had been through so much trauma and was in so much pain that my brain was not sending the correct signals to my legs. It was so frustrating not even to be able to put one foot in front of the other.
After five weeks in hospital, I returned home in a wheelchair, with a walking frame (my grandma had one the same). I would continue to receive threatment as an outpatient three days per week.
I remember celebrating the day I walked from the front door to the letterbox (approx 15m) – I felt like I had run a marathon – even though I had used the frame. I soon graduated to a walking stick (which made me really self-conscious – why was everyone staring at me?) and I used that for another couple of years.
It was nearly four years before I began to walk “normally” – ie without a limp. I had walked for so long with a limp that my brain thought that was my normal walk and even when then pain lessened, I still walked the same way. It took lots of rehab and walking in front of a mirror (for months and months), to retrain my brain into allowing me walking normally.
For the next few years I regularly attended rehab and a pain management program and had counselling as I became depressed and wasn’t coping very well with the pain, and how much my life had changed and the effect it had on my personal and professional life.
It took awhile for me to realise how lucky I was to have survived that day and that my injuries could have been a lot worse.
I was so fortunate to have such a wonderful and caring partner and be surrounded by family and friends who loved me. I could not have gotten through this without them.
I still have days where the pain is more than I can bear and I get angry and think “why me?”. But then I think about what could have been and realise, I am the LUCKIEST person in the world.
It’s Botox Time (again)!
I’m feeling sick to the stomach as I prepare myself (mentally) to have more Botox treatment for my migraines tomorrow (read more about my first treatment here).
12 weeks ago I had Botox injected into my head, neck & shoulders – 41 times! and for someone who HATES needles it was torture!
I have been so desperate to get my migraines under control that I was willing to try anything. I might even consider giving up shopping if that would make them go away (YES, I am that desperate!)
Thankfully, I’m happy to say that the number of migraines I have suffered since then has been reduced, unfortunately not as much as I had hoped but still an improvement.
During the past 92 days I have had migraines for 20 days. That may still sound like alot, but believe me that’s a big improvement for someone who would normally suffer 40-50 migraine days in 3 months. The injections have also help a little bit with the pain in my neck and shoulder.
I’m often asked by people (especially other mums) how I cope with so many migraines and how I manage to work and look after my family.
I usually put on a brave face and tell them that I manage ok but in truth I don’t. It’s REALLY REALLY hard taking care of little ones and going to work and managing everything else (when all I want to do is lock myself away in a quite darkened room and sleep) but I’m alive and lucky to have been able to have kids and work and all the rest, so I’ll put up with pain as a trade off for everything else that’s wonderful in my life.
After my injections tomorrow, I will also recommence taking my daily preventative medication, so hopefully the two will work even better together.
Fingers crosses that my next migraine update will be a positive one.
Until next time